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Current transition practice for primary immunodefciencies and autoinfammatory diseases in Europe
Israni Muskan, Bethany Nicholson, Nizar Mahlaoui, Laura Obici, Linda Rossi-Semerano, Helen J Lachmann, Georgia Hayward, Mojca Zajc Avramovič, Aurelien Gufroy, Virgil Dalm
Izvirni znanstveni članek
Oznake: sindrom akutne dihalne stiske;Transition;primary immunodefciencies;autoinfammatory diseases;network;
Background: Due to the absence of curative treatments for inborn errors of immunity (IEI), children born with IEI require long-term follow-up for disease manifestations and related complications that occur over the lifespan. Effective transition from pediatric to adult services is known to significa ...
Leto: 2023 Vir: Digitalni repozitorij raziskovalnih organizacij Slovenije
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